Note to reader: The following post is ONLY about me talking about my own personal feelings and experiences with my Cerebral Palsy. My experience with Cerebral Palsy will be different than someone else you has Cerebral Palsy and I will NEVER EVER speak for anyone else’s disability other than my own.
Dear reader today is national Cerebral Palsy awareness day(March 25th) if you don’t already know I have Cerebral Palsy I have had it since birth due to a grade 3 bleed in the back of my brain.
I have spastic quadriplegia(meaning all 4 of my limbs are affected by tightness) I can still talk and think just fine however I can’t walk at all because I have messed up knees that reqrequire major knee reconstructive surgery to be able to see if I could possibly stand again (I used to be able to stand as a kid with help before my knees got messed up) as well as surgery to fix my feet however no insurance companies would be willing to pay for my knees to be fixed because of the rules requiring that the patient be able to show prior to the surgery that you would be able to walk at least a certain amount of steps which I personally can’t do because of how my Cerebral Palsy affects me.
I have to use a electric wheelchair to get around. I try my hardest not to let my Cerebral Palsy affect my dreams.
It will NEVER EVER define who I am as a person, I am so much more than my Cerebral Palsy and what it doesn’t let me do.
I have loved,(been married and divorced) I’m a sister, a daughter, an aunt(and great-Aunt, my oldest niece and nephew have their own kids now), a friend, a reader, a writer, a video game player, a politics nerd, a hopeless romantic, a fighter(I’m stubborn and don’t give up easily) and none of those things can be taken from me/defined by my CerebralPalsy.